Monday, August 11, 2014

Concussions Can Be Serious-- Ya' Think?




     After my traumatic brain injury, I used to think frequently that "Not so many people give a crap about concussions or about t.b.i." That changed. First there was some news about our veterans returning from the battlefields with brain injuries. [I do have several relatives involved with the Wounded Warrior Project]. Then people decided to get excited about concussions in professional sports and in high school football.

     Attention can be a good thing. Awareness gets raised that way and suddenly one community passes a law about bicycle helmets. Another implements guidelines for high school athletes who get their heads banged in the field. 

     But attention can also be not so good. When the populace is not exposed to original research-- and don't know how to interpret it if the data was made available-- articles written for common folks can be mystifying and contradictory. In the references below, articles have maintained that either location of impact has little to no impact upon outcome or that top of the head impact is worse than other areas and is more likely to cause unconsciousness. Or that high school football players are most at risk for permanent cognitive effects. 

     Do you want to believe the professional athlete who has had three concussions and is not fazed by the idea that a fourth can end his career? Or do you want to believe those folks who are no longer able to work after what was initially diagnosed as a "brain bruise," "a concussion," "post-concussive syndrome," or nothing? Or the guy in the sailboat race who was hit hard by the boon in an accident, gets hospitalized for several weeks and almost dies, can return to work but is told he cannot ever sail again? Another injury to his head like the last one may well be his last one.

     The thing is, every head injury looks different. Whether it is a concussion-- a brain injury with no lasting effects-- or a brain injury that is judged to be a traumatic brain injury (which has lasting effects), or an acquired brain injury (from stroke or brain tumor removal etc.), every single head injury looks different. The t.b.i. survivor who did not lose consciousness at all may in fact be more permanently disabled than the survivor who arrived to the emergency room unconscious. Add to that, the reluctance of the adolescent to admit to having cognitive symptoms or how badly his or her head hurts and the denial of the professional athlete who figures the glory of the game is of higher priority than the integrity of the brain.

sapphoq healing traumatic brain injury says: Those of us who have had brain damage know how serious any injury to the head can be. We also know that repeated concussions can alter brain functioning permanently. 

     

References:

http://www.woundedwarriorproject.org/


http://www.steamboattoday.com/news/2014/aug/10/monday-medical-concussion-tools-help-recovery/
        The article that I liked the best.



http://www.empr.com/for-concussion-outcomes-impact-location-has-limited-effect/article/365564/

http://www.designntrend.com/articles/17823/20140811/football-concussions.htm

http://www.reuters.com/article/2014/08/11/us-concussions-football-high-school-idUSKBN0GB07C20140811

http://www.medicalnewstoday.com/articles/280869.php



http://www.cdc.gov/concussion/HeadsUp/index.html

http://www.winnipegfreepress.com/arts-and-life/life/health/blasting-away-at-concussions-270711161.html?cx_navSource=d-tiles-2



http://espn.go.com/blog/nflnation/post/_/id/135137/lowery-no-reservations-after-concussion

http://www.thefalcoholic.com/2014/8/9/5987021/dwight-lowery-returns-to-practice-saturday



http://en.wikipedia.org/wiki/Concussion_grading_systems

http://post-concussion-syndrome.com/
         From an attorney website, sorry.

http://www.mayoclinic.org/medical-professionals/clinical-updates/general-medical/diagnosing-treating-sports-related-concussion
         Guidelines from the Mayo Clinic re: sports-related concussions in schools.

Saturday, August 02, 2014

Don't Have a T.B.I. in Kansas




     Even though there really is no "treat" in the word treatment, Medicaid denying access to services for a young man with a complex set of behaviors related to the after-effects of his traumatic brain injury is-- in my unasked for opinion-- inexcusable. The young man is a resident of the state of Kansas. His mother does not know what to do with him or for him. She cannot handle him due to problematic behaviors which have caused him to wind up in jail. While in jail, he had a seizure. The seizures are another, ahem, "gift" of his damaged brain.

     My own experiences with insurance companies causes me to believe pretty much that they are not interested in paying for t.b.i. services. Especially when no-fault car insurance is in effect. No-fault simply means "This ain't out fault and we ain't paying." The workers' comp company was similarly disinterested in paying my bills. Consequently, the only therapies I received were physical therapy [which did help immensely], vision therapy [which has not been medically proven], and a few sessions with a quack "cognitive art therapist" who threw me out because I refused to go to her personal internist to be prescribed medications. [I already had my own most excellent professionals in place]. The word quack is used as an adjective. People who claim to have a PhD [thirty-five bucks and a copy of a book describing her own history with brain injuries-- nine to be exact-- got her a piece of paper] from an alleged mail-order fake college may not be totally honest about their qualifications. I was told in t.b.i. chat that I had to take charge of my own rehab. This certainly has proven to be true.

     But the young man in Kansas is not able to do what I did. Some folks can't because of their level of impairment and that is a fact. Period. Meanwhile, Medicaid refused him admittance to a long-term program of six months to a year as an in-patient in a hospital as a patient with t.b.i. I feel bad for both the young man and his mother. 

     It seems that unless news items involve the word sports or the word veteran, some percentage of the population does not understand, does not wish to understand [in the case of employers and past employers], or cannot understand that head injuries can bring on complex symptoms which don't go away by wishing. A Vermont ski area certainly does not wish to understand [in my opinion via perusal of a court order] that the head and the neck are connected and that headaches certainly do originate in the head. I feel badly for the young man involved in that court case. He was a volunteer at the ski resort and was severely injured when snowboarding off the mountain. His injuries included but were not limited to a traumatic brain injury.

sapphoq healing brain damage says: Rehabbing someone with a traumatic brain injury costs money. Every brain injury is different. What happens to us in the aftermath may be very complex. We who have lived through brain injuries are people and we deserve competent treatment. What price are you insurance companies putting on our heads??? FAIL.






http://www.leaderandtimes.com/index.php?option=com_content&view=article&id=17624:medicaid-denies-treatment-request-for-young-man-with-brain-injuries&catid=12:local-news&Itemid=40

http://labor.vermont.gov/wordpress/wp-content/uploads/KibbieMSJ.pdf

Tuesday, July 29, 2014

If It's Worth Having, Then It's Worth Working For




     Out of all of the professionals and specialists that I've dealt with in respect to my traumatic brain injury, there was a grand total of one-- and only one-- who told me that I was capable of learning how to control my impulses and harness my dis-inhibitions. Let me explain further:

     Go to any brain injury unit and you are likely to find patients who curse fluently. I'm not claiming pre-injury innocence. What I'm saying is that cursing originates from the more primitive, reptilian part of the brain located deeper in than language is. Hurt a brain, you will probably hurt communication but the cursing may remain more fluent than language skills for a time.

     I was talking with a friend who is eighteen months away from his stroke. He told me that he was having trouble with just blurting things out. He was astonished when I said that he could learn to govern that. Blurting things out and cursing both have a similar emotional component to them, to my way of thinking. 

     I also had experienced those sorts of demands from my fractured brain. I learned that when I was feeling a pressure to "Say it, just say it!" that was when I almost certainly should not "Just say it." And the cursing thing? I found out that it was easier for me to strive not to curse at all than it was for me to give myself permission to curse at some times and not at others. Learning not to insert the f-bomb into every other sentence and learning not to blurt things out were two things that helped me feel some semblance of control during a time when the world was still wobbly and rotating slowly to my left.

     Was it difficult and challenging to develop some self-discipline? Yup. But I worked on it and I continue to work on that because I have found the results to be rewarding. Not feeling driven to tell my very proper mother-in-law filthy jokes over dinner in a restaurant made the meal go better. I was happier being able to blend in a bit. And m.i.l. certainly was happier too.

     Do I curse now? Yup. A lot less than post-injury and less than my pre-injury days too.

     Self-discipline is something that I found to be worth working for. I tell myself daily, "Get up, clean up, walk the dog, go to the gym. Your brain damage is not an acceptable excuse for your laziness." And so I get up, clean up, walk the dog, and go to the gym. I still have to rest during the day however I am getting stuff done now. And that feels good to me.

     There are bunches of stuff that is no longer automatic for me. I have to think through some tasks before I am able to do them. I have to concentrate on where my feet are going as I walk so I don't fall. I have to have things put away in the same places today so that I can find them again tomorrow. Supplies for cleaning the floors go on one shelf on the back porch. The laundry bag lives next to the washing machine. The stationary, bills, check book, stamps, and pens are kept in the desk. I still struggle with organizing today but not as much as I used to. I can get more done because I am not stumbling around the house in a blind rage unable to find the vacuum cleaner bags.

 sapphoq healing t.b.i. says:

If It's Worth Having, Then It's Worth Working For.

If It's Worth Having, Then It's Worth Working For.

If It's Worth Having, Then It's Worth Working For.